Useful Links to My Foundation

These are some links to other useful myeloma resources.
If you have any other links that you feel could be included here, please email the webmaster at info@myeloma.org.au

International Myeloma Foundation (IMF)
www.myeloma.org
T: 001 818 487 7455 F: 001 818 487 7454
Email: TheIMF@myeloma.org
An International charitable organisation that informs and supports those affected by myeloma. Provides a comprehensive range of patient material available from their website. Information is also available in a range of languages.

Myeloma UK
www.myeloma.org.uk
E-mail: TheIMF@myeloma.org.uk
Tel: +4 131 556 9720
A UK based charity that informs and supports people affected by myeloma, and helps to improve standards of treatment and care through education and research. A comprehensive range of patient information material is available to download on line.

Myeloma TV by Myeloma UK
www.myelomatv.org.uk/Channel.aspx?cid=AboutMyeloma
This is an initiative of Myeloma UK and shows a number of video clips of patients and doctors explaining myeloma and its treatments.
It is very informative however it does require a fast internet connection.

Multiple Myeloma Research Foundation (MMRF)
www.multiplemyeloma.org
Email: info@themmrf.org
Tel: +203 972 1250
Charitable organisation that provides information for those affected by myeloma whilst funding a large amount of medical research. Comprehensive range of patient information material.

Health Talk Interactive – Myeloma
www.healthtalk.com/multiplemyeloma/
This is a part of the Health Talk Interactive website. Set up in cooperation with the two major US support organisations, IMF and MMRF.

Association of Online Cancer Resources
www.acor.org
Hosts an active online myeloma support group.
 

Cancer Australia
P O Box 1201
Dickson ACT 2602
Telephone: (02) 6200 1700
Fax (02) 6200 1799
An organisation, established as an initiative of the Australian Government, Department of Health & Ageing to help reduce the impact of cancer for all Australians.

The Leukaemia Foundation of Australia
www.leukaemia.com
GPO Box 9954
In your capital city
Toll free 1800 620 420
A national not-for-profit organisation dedicated solely to the care and cure of patients with leukaemia, lymphoma, myeloma and related blood and marrow disorders. They provide a range of support services that includes the provision of information, education, support, accommodation and transport.

The Cancer Council of Australia
www.cancercouncil.com.au
Cancer Helpline 13 11 20
A national charitable organisation whose mission is to defeat cancer by building a cancer smart community. It aims to do this by focusing on five priority areas: research; patient support and information; cancer prevention and screening; advocacy; working in the community and fundraising. Provides a free and confidential telephone information and support service staffed by specialist cancer nurses.

Cancer Council Victoria
www.cancervic.org.au
Cancer Helpline 13 11 20
Cancer Council Victoria is a non-profit organisation involved in cancer research and cancer support, prevention and advocacy. Thare are involved with advising government and liaising with business and professional groups to help create strategies to fight cancer.

Carers Australia
www.carersaustralia.com.au
Toll free: 1800 242 636
An Australian Government initiative, Carers Australia represents the needs and interests of carers at a national level. For information and support carers can call the Commonwealth Carer Resource Centre in their state or territory. A comprehensive information kit is available along with a variety of fact sheets available online.

Cancer Institute of New South Wales
www.cancerinstitute.org.au

The Cancer Institute NSW is the first statewide, government supported, cancer control agency. It has a ‘Patient and Carers’ section that provides a number of useful publications to assist cancer patients and their families.
Click on the ‘Standard cancer treatment protocols’ section of the web site (CI-SCaT) then click the ‘Patient and Carers’ tab, to find patient information sheets on the common treatment combinations for myeloma.

The National Cancer Institute (USA)
www.nci.nih.gov
An extensive website with excellent information on all cancers and treatments. Comprehensive overview of myeloma with a glossary of terms provided.

CancerBACUP UK
www.cancerbacup.org.uk
UK based cancer charity with a wide selection of information resources available online.

Useful Text Books

Click on the link below to download our Useful Textbook Spreadsheet (Excel format)

[Excel Doc Link]